Record Your Visits

How Doctor Notes helps FTD families capture, understand, and share medical conversations.

If you’ve read this far, one thing is clear: FTD families deal with more medical information, more appointments, and more coordination than almost anyone.

How it works

Open the Doctor Notes app, tap record, and set your phone down. The app records the conversation, transcribes every word, and creates a clear summary. Medical terms are explained in plain language. You can share the summary with your family so everyone stays on the same page.

Why this matters for FTD families

For Caregivers. You’re seeing multiple doctors, telling the same history over and over, keeping your family informed. A shared summary means nobody works from memory alone. When you walk into the next appointment or update a family member, you have the facts right there.

For Pre-Symptomatic Carriers. You’re seeing neurologists, genetic counselors, multiple specialists. Medical recommendations change. A clear record of every conversation helps you track how your risk profile evolves and what your doctors are recommending at each step.

For People Living with FTD. If memory or language is affected, a reliable record of what the doctor said is invaluable. Even when a conversation is hard to follow, you can go back and understand what was said and what comes next.

Nobody remembers everything their doctor says. That’s not a flaw. It’s just how it works. But with FTD, the stakes of forgetting are higher, the conversations are harder, and the need to share information with others is constant.

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This resource hub is maintained by Doctor Notes in partnership with the FTD community. If you have feedback, corrections, or resources we should include, contact us at hello@getdoctornotes.com.